This boy you see above wasn’t born like
this, but a sudden sickness crawled in when he was three and changed
his life. The virus ate him so bad that his neck muscles couldn’t hold
his neck again leaving it to fall right, left and front freely. His
story below…
The family is appealing for urgent
medical help for their son who suffers from a mega-rare condition which
has left him with a twisted neck and a ‘wasted’ body. Mahendra Ahirwar,
12, from a village in India’s Madhya Pradesh state ,suffers from a
mystery muscle-wasting disease, which has left him too frail to support
his own body parts.
The boy’s extensor neck muscles are
unable to hold his head in place, meaning it constantly falls onto his
right shoulder or his chest. In addition, his limbs have lost almost all
muscle tissue, leaving him weighing just two-and-a-half stone.
Mahendra’s parents say he was born a
healthy baby, but within three years of his birth he developed the
condition. They have been battling the condition for 9 years now, and no
specialist has been able to help. His mom wonders if it is only death
that can deliver him from this.
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